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Oh the holidays...

12/20/2010

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Today we met with our surgeon to cover off the results of the surgery, ongoing treatment recommendations and to answer any questions we might have.  Here is the low down:
- 5% chance of metastasizing
- 5% chance of recurrence
- check up including MRI every 3 months ongoing monitoring
- She will need a "fresh" or "clean" MRI in January (2-3 months post-op) to map all future MRIs against.
- We will be going for Genetic Testing to see if she has any genetic predisposition for this (given my family history of mom=non-Hodgkins Lymphoma and dad=colon cancer).

We had a big scare a few days prior to this appointment when we discovered a very large lump in her mouth.  Thankfully it ended up being an "abruption cyst" and totally unrelated to her condition.  Thank God.

A great gift this Christmas.  We were given the gift of our health and our happiness.  Her tumor was removed with clear margins and in the New Year, her schedule for monitoring begins.  A fresh new year to look forward to.
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    Blog?  What For?

    I've never had a blog...nor have I ever cared to have one until now.  I feel I have something to write about.  I feel I have something to share with the world.  Perhaps it is yet another form of egotistic narcissism - my take on Facebook "status" posts, Twitter and all the other social networking websites.  I guess the difference is that I'm not telling the world "going to meet my BFF for a coffee".  I truly feel others can learn from my experience.  I am certainly learning everyday.  Let's see...so far I've learned to simmer my crazy spiraling of stupidity on stupid issues (haven't quite mastered completely omitting them from my life just yet).  Not sure if I can re-train my entire personality and existence thus far.  Plus I'm great at being passionate on stupid issues. 

    I'm going to say the most important lesson learned is to take complete control of your own health (or in my case, my daughter's).  No one will say "oh hey let me check into this for you and wait, we need to look at this and oh let me get you an appointment right away.  How about tomorrow?"  The insanity of the endless phone calls just for an MRI, the confusion in paperwork, all the while a 5 year old child is waiting...just to be looked at.  Just to be taken care of.  Well I'm here and I'm taking care of her and I'm pushing myself through to make sure she's not the bottom file on that desk somewhere.  Important lesson. 

    I've also learned to value oh so dearly the wonderful things I have in my life especially my beautiful children and my wonderful husband.  The many times I've taken my life and the beauty within it for granted.  How sad.  How sad that I needed something like this to happen to truly open my eyes.  They're open now.  Still learning.  But wide open.  I'm seeing things so much clearer.  I'm sure many more lessons to come.  Thus the creation of my Blog...here it is.

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